Invitation to PrevenTalk #3: Advancing Access to Care for Rare Tumour Risk Syndromes (RTRS) Through Policy, Economics, and European Collaboration

Join us for the third edition of our “PrevenTalk” webinar series in early May 2025 as we continue to explore innovative approaches to cancer prevention through the lens of Rare Tumour Risk Syndromes (RTRS).

Topic: “Advancing Access to Care for Rare Tumour Risk Syndromes (RTRS) Through Policy, Economics, and European Collaboration.”

Date & Time: 6 May 2025, 11:00 CEST Brussels Time

Location: Zoom Video Conference (registration required)

What to Expect:

1. Insights into RTRS Policy Recommendations – Discover evidence-based strategies designed to enhance access to care and streamline RTRS pathways across Europe.

2. Discussion on Economic Barriers – Learn how current reimbursement mechanisms affect RTRS treatment access and explore new models to reduce financial strain on healthcare systems and patients.

3. Spotlight on Cross-Border Collaboration – Hear how EU projects like PREVENTABLE and FLASH are working together to build stronger, data-driven networks and sustainable healthcare financing solutions.

4. Distinguished Panel of Experts – Engage with speakers from the European Commission, healthcare providers, ERN-Genturis, and leading EU research projects.

This dynamic 1-hour session will bring together policymakers, clinicians, researchers, and patient advocates to discuss actionable solutions and next steps for improving care for RTRS patients across Europe.

Agenda

The EHMA team will introduce the webinar, outline the session’s objectives, and provide a brief overview of the PREVENTABLE project and its focus on Rare Tumour Risk Syndromes (RTRS).

The EHMA team will present key findings and evidence-based policy recommendations addressing barriers in RTRS care, developed through PREVENTABLE’s research and stakeholder consultations.

A multi-stakeholder panel featuring policy experts, healthcare providers, ERN representatives, and sister project collaborators will discuss challenges in reimbursement, cross-border care, and international cooperation to improve RTRS care pathways.

Participants will have the opportunity to engage with the panel, ask questions, and share insights on RTRS policy and care improvements.Participants will have the opportunity to engage with the panel, ask questions, and share insights on RTRS policy and care improvements.

The EHMA team will summarize key takeaways from the session and highlight next steps for implementing recommendations and fostering continued collaboration across Europe.

Speakers

Professor Stefan Aretz

 University Hospital Bonn

Dr. Ignacio Blanco Guillermo

Germans Trias Hospital

Dr. Jana Votápková

Charles University in Prague

Dr. Romana Jerković

European Parliament

Let’s work together to make RTRS care more accessible, equitable, and effective. See you at PrevenTalk 3!