The WP4 team from NOVA University of Lisbon presented a poster at the European Health Psychology Society Conference (EHPS) 2024, held from September 3-6, 2024, in Cascais, Portugal. The team shared their ongoing cross-cultural study being conducted across six European countries, which investigates barriers and facilitators affecting care pathways for rare tumour risk syndromes (RTRS).

The study comprises two surveys (one for clinicians and another for RTRS patients) and will triangulate these survey results with data from focus groups. A pilot study with clinical teams has already identified several key barriers, including limited knowledge and guidelines, as well as important facilitators, such as reimbursement and clear communication. The results of this ongoing research will help shape strategies to improve the referral and adoption of RTRS preventive care.

This research supports PREVENTABLE’s mission to enhance cancer prevention and care for families with rare genetic syndromes.