The French team of the PREVENTABLE project, Centre Hospitalier Universitaire de Rouen and Centre Regional de Lutte Contre Le Cancer Henri Becquerel Rouen, will organise a Midterm Conference on October 3, 2024 in Rouen, France. During the conference “Charting the economics of hereditary cancer: from theory to real world data”, we are privileged to host four distinguished keynote speakers, in the areas of Tumor Risk Syndromes, health economics, and communication in healthcare. In addition, members of the PREVENTABLE project will present and demonstrate the results and objectives achieved thus far, offering a firsthand look at the tangible impact of our collaborative efforts.

Objective

This conference is not just a review of progress but a platform for collective problem-solving and strategizing for the future. It is an opportunity for meaningful discussions, idea exchange, and fostering connections among participants. This conference stands as a pivotal checkpoint in our journey, a day dedicated to assessing progress, navigating challenges, exchanging ideas, and ensuring that our project stays firmly on course to achieve its ultimate objectives.

Agenda

3 October 2024

08:30 – 09:00: Registration and Welcome Coffee
 
09:00 – 10:20: Session 1 – Rare Tumour Risk Syndromes (RTRS)
  • 09:00 – 09:35:
    Keynote 1: “From genetic diagnosis to cumulative health costs in RTRS: the example of Hereditary Diffuse Gastric Cancer (HDGC)” by Carla Oliveira – PREVENTABLE Coordinator, i3S, Porto
  • 09:35 – 09:50:
    Oral communication PREVENTABLE member 1: “Not such a rare syndrome: uncovering the prevalence” by Adriana Costal – ICO, Spain
  • 09:50 – 10:05:
    Oral Communication 1: “Li-Fraumeni syndrome: phenotype and care pathway variability” by Marion Gauthier-Villars – Institut Curie, France
  • 10:05 – 10:20:
    Oral Communication 2: “Gastrointestinal Stromal Tumours in Carriers of Rare Germline Variants in KIT/PDGFRA: An Update” by Paula Boaventura – Ipatimup, Portugal
      •  
10:20 – 10:50: Morning Break
 
10:50 – 12:10: Session 2 – Cost-Effectiveness
  • 10:50 – 11:25:
    Keynote 2: “Individual Preferences among Patients in Remission from Breast Cancer: a survey in a French comprehensive cancer center (PreSanCA)”
    by Thomas Vermeulin – Department of Medical Information, Centre Henri Becquerel, Rouen, France and
    Clémence Thébaut – Inserm U1094, University Limoges, Limoges, France
  • 11:25 – 11:40:
    Oral communication PREVENTABLE member 2: “Developing a modelling framework for cost-effectiveness modelling of Rare-Tumour Risk Syndrome” by Andrew Titman – Lancaster University, UK
  • 11:40 – 11:55: 
    Oral Communication 3: “Cancer Prevention versus Cancer Treatment in Familial Malignant Melanoma – Presentation of Costes in Parallel Pathways of Care” by Birte Lundhaug & Hildegunn Vetti – Haukeland University Hospital, Norway
  • 11:55 – 12:10:
    Oral Communication 4: “Rare Tumour Risk Syndromes, Modelling the Natural Progression: A Scoping Review” by Carolina Di Fabrizio – NOVA University of Lisbon, Portugal
12:10 – 14:15: Lunch + Poster Viewing
 
14:15 – 15:00: PrevenTalks Roundtable – Science and policy focus event about RTRS for stakeholder outreach (stakeholder map and SWOT analysis)
For more information, Please refer to tab “PREVENTALK II“
 
15:00 – 16:20: Session 3 – Communication in Healthcare
  • 15:00 – 15:35:
    Keynote 3: “Empowering patients for informed decisions: principles for effective cancer risk communication”  by Yasmina Okan – Department of Communication, Pompeu Fabra University, Barcelona, Spain
  • 15:35 – 15:50:
    Oral communication PREVENTABLE member 3: “Improving communication in healthcare: the role of behavioural science” by Marta Marques – NOVA University of Lisbon, Portugal
  • 15.50 – 16:05:
    Oral communication PREVENTABLE member 4: “Bridging the Gap: Empowering Healthcare Managers in RTRS Prevention” (Communication with healthcare managers) – Raquel Chantre – Portuguese Association of Hospital Managers, Portugal 
  • 16:05 – 16:20:
    Oral communication PREVENTABLE member 5: “Creating outreach materials for 8 Rare Tumour Risk Syndromes” by Nuno Marcos, IPATIMUP, Portugal
      •  
16:20 – 16:50: Afternoon Break
 
16:50 – 17:40: Closing Session
  • 16:50 – 17:25:
    Keynote 4: “A journey modelling the cost-effectiveness of genetic cancer testing” by Dr Rosa Legood – Department of Health Services Research and Policy, The London School of hygiene and tropical medicine, London, England
  • 17:25 – 17:40:
    Closing Remarks by Claude Houdayer and Carla Oliveira
      •  
20:00 – Finish: Networking Reception/Dinner
The conference will end with a reception in the Sculture Garden of the Rouen Art Museum (a glass roof with a pool, surrounded by a collection of
19th-century artworks). It is located at Esplenade Marcel-Duchamp, 76000, Rouen. A guided tour of the Impressionist collection will be offered. More information click HERE
 

Introduction

PrevenTalk is a series of webinars and roundtable discussions organized under the PREVENTABLE project. It aims to raise awareness, foster discussion, and share insights on the prevention, diagnosis, and management of Rare Tumour Risk Syndromes (RTRS). These syndromes are rare, genetically inherited conditions that significantly increase an individual’s risk of developing various types of cancer. Each PrevenTalk session brings together experts, including clinicians, researchers, policymakers, and patient advocates, to discuss the latest research, best practices, and policy recommendations related to RTRS. The sessions focus on improving patient care pathways, promoting personalized medicine, and exploring interdisciplinary approaches to enhance prevention and treatment strategies across Europe.

The PrevenTalk 1 featured Dr. Hildegunn Vetti, who highlighted the importance of involving geneticists in cancer prevention strategies for Rare Tumour Risk Syndromes (RTRS) through a multidisciplinary approach. Ms. Rachel Chantre stressed the need for personalized care pathways and collaboration between healthcare professionals and policymakers to support RTRS patients. Ms. Alina Senn from the European Commission outlined EU efforts, including the European Reference Networks and the JARDIN project, to improve access to specialized care for RTRS. Dr. Ana Povo emphasized the importance of evidence-based policies for effective prevention. The webinar underscored the value of collaboration to enhance RTRS care and prevention. Learn more HERE

The PrevenTalk 2 centers on analysing the Strengths, Weaknesses, Opportunities, and Threats (SWOT) of care pathways for Rare Tumour Risk Syndromes (RTRS) by building on insights from interviews with leading clinicians across Europe. The discussion will focus on themes comparison from the SWOT analysis across different healthcare contexts, highlighting the importance of prevention in RTRS pathways, evaluating the benefits of multidisciplinary and personalized care teams and providing clear policy recommendations to enhance RTRS patient care and management, promoting more effective and patient-centric approaches across diverse healthcare settings.

Format

The PrevenTalk 2 moderated by The European Health Management Association (EHMA) is in the hybrid roundtable format, as part of the PREVENTABLE project’s Midterm Conference taking place in Rouen, France and through our social media channel. It will bring together clinicians, researchers, and policymakers to discuss best practices for preventing and treating Rare Tumour Risk Syndromes (RTRS).

Registration

HERE

Learn More

WATCH HERE

Speakers

Speaker 1: Sophie DEVEAUX, PhD – French National Cancer Institute

Sophie Deveaux

Sophie DEVEAUX, PhD is a Project Manager in the Biology, Transfer, and Innovation Department, in collaboration with the Organisation and Care Pathways Department, at the French National Cancer Institute. She is in charge of coordinating the national oncogenetics system and supporting its structuring, particularly the organisation and deployment of oncogenetics consultations and follow-up programmes for people with a hereditary predisposition to cancer.


Speaker 2: Judith Balmaña – Principal Investigator for Hereditary Leiomyomatosis and Renal Cell Carcinomas, Vall d’Hebron Institute of Oncology

Judith Balmaña

Judith Balmaña is a medical oncologist whose area of research expertise focuses on the identification and clinical management of individuals with a hereditary susceptibility to cancer, as well as targeted therapeutic options for individuals with a germline alteration leading to homologous recombination deficiency.


Speaker 3: Louis Charlet – Deputy Chief Financial Officer, Rouen University Hospital

Louis CHARLET is deputy CFO at Rouen University Hospital.
He has developed a strong expertise in activity-based revenues and internal control.


Speaker 4: Professor Jean-Yves Blay, MD, PhD – ESMO Director of Public Policy

Professor Jean-Yves Blay, MD, PhD, is a distinguished medical oncologist, Professor of Medicine at the University Claude Bernard in Lyon, and General Director of the Centre Leon Berard, Lyon’s Comprehensive Cancer Centre. His extensive research focuses on sarcoma, genomics, targeted cancer treatments, immuno-oncology, and the tumor microenvironment, aiming to enhance diagnosis, prognosis, and treatment strategies. As Director of the French Network of Reference Centers for Sarcoma and Coordinator of the European Reference Network for Rare Adult Cancers (EURACAN), he has significantly contributed to improving cancer care and clinical trial organization at both national and EU levels.

Registration

Registration fee for online participants is €50 (Health professionals / Researchers) and €25 (Students), covering registration, abstract book, coffee breaks and lunch and access to the conference and the PrevenTalk 2. Dinner is not included.
The networking reception / dinner registration is closed!

Note:

  1. Please indicate your food restriction on the registration form
  2. Latest registration and payment received on the 30 September 2024 (online participants)
  3. Last chance to submit your abstract: Friday 27th September 2024!
  4. For students, you are also required to send a proof of your status as student (ex. Student’s ID)

Payment

Bank Details:

  • IBAN: PT50 0018 000351813897020 08
  • BIC / SWIFT: TOTAPTPL
  • Account Name: IPATIMUP
  • Name of Bank: Banco Santander Totta S.A.
  • Address: R Julio Amarial Carvalho 45, Porto, 4200 135, Portugal

Send the proof of the payment and your registration form (in Pdf) to preventable@i3s.up.pt

Note:
Please note that registration will only be completed after you send the proof of payment, including the contribution ID, to the following email: preventable@i3s.up.pt

Abstract submission information

Candidates can select their preference for an oral or poster presentation.

Authors should follow the abstract template format

Authors may follow the given poster template (NOT MANDATORY). Authors may use their own template (A0, Portrait)

The templates are available:

ABSTRACT
POSTER

 

Instructions:

  • Abstract submission can only be done by email to Carla Oliveira & Sara Pereira: preventable@i3s.up.pt
  • Indicate the subject email: Abstract Submission PREVENTABLE Midterm Conference 2024
  • Include your registration form in the attachment.
  • Ensure your name match on both documents Abstract and Registration Form [First name, Surname]
  • Submission Deadline: 14 September 2024. Extended to 21 September 2024. Friday 27th September 2024 (Last chance to submit your abstract!)
Venue


Instruction:
If you’re coming from the city centre, you can take
1. the T1 bus (to Mont aux Malades – Mont Saint Aignan) or
2. the T2 (to Mairie / V.Schoelcher – Notre Dame de
Bondeville) or
3. the T3 (to Monet – Canteleu)
Then you will need to stop at the Mont-Riboudet stop
Find the Pathé Docks 76 – 2nd floor – Room 14
1 Bd Ferdinand de Lesseps
76000 Rouen

Accommodation

To ensure a comfortable stay and convenient commuting options during the conference and meetings, we have provided a detailed map and comprehensive information about your accommodation in Rouen.

Information on the city of Rouen : https://en.visiterouen.com/

Contact information of Accommodation in Rouen : The information will be available soon

Public Transport

Getting around Rouen is easy thanks to the city’s efficient public transportation system. The system consists of an underground and buses, all of which are operated by Réseau Astuce. Passengers must purchase a ticket before boarding the transport at the ticket machines located at each stop or online (SMS). However, tickets checks are conducted randomly, and passengers caught without a valid ticket face a hefty fine.

  • Single trip ticket : travel wherever you want for 1 hour = € 1.80
  • 24 hour DISCOVERY ticket : discover the city in 24 hours, without limits = € 5.70

Get more information here : https://www.reseau-astuce.fr/en

If you require additional information about the event (including event’s agenda), tourism in Rouen or encounter any emergency situations, please refer to the contacts listed below.

  • The Emergency SOS : 112
    • Police : 17
    • Medical Aid Emergency : 15
    • Fire and Ambulance Service : 18
  • Rouen Tourisme :
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