From March 7th to March 8th, 2024, the Preventable Consortium convened for a hybrid meeting, delving deeply into the ongoing advancements of the project. With a dedicated focus on addressing Rare Tumour Risk Syndromes, our discussions were characterized by an infusion of innovative ideas and tangible progress, all geared towards providing vital support to individuals and families affected by these conditions.

Throughout the meeting, our esteemed partners seized the opportunity to share their progress, articulate challenges, and engage in collaborative efforts aimed at refining and enriching all facets of PREVENTABLE. Key topics of discussion included:

• Pathways of Care: Analyzing methodologies and outcomes to streamline patient care processes.
• Disease Progression and Cost Modeling: Evaluating the trajectory of diseases and their financial implications.
• SWOT Analysis: Conducting a comprehensive examination of strengths, weaknesses, opportunities, and threats.
• RTRS and PREVENTABLE Communication & Dissemination: Crafting effective communication strategies tailored to diverse stakeholders.
• Patient & Family Experience Collection: Prioritizing the voices and experiences of those directly affected by these conditions.

At PREVENTABLE, we remain steadfast in our commitment to sharing valuable insights that foster a deeper understanding of Rare Tumour Risk Syndromes and the profound impact of our collective endeavors.