The kick-off meeting (KoM) recently occurred at i3S – Institute for Research and Innovation in Health, University of Porto. With a budget of 4.6 million euros funded by Horizon Europe, this ground-breaking initiative is led by a distinguished Portuguese research team at i3S. The consortium comprises 46 participants from 15 institutions across 8 European countries, all gathering to kick start the project. The main goal of this meeting is to discuss PREVENTABLE’s objectives, scope, and methodologies, as well as the roles and responsibilities of each partner. This kick-off meeting provided an opportunity for collaboration, alignment, and planning, ensuring that the PREVENTABLE project starts on a strong and unified footing.
The project’s overarching goal is to assess the clinical, social, and financial impacts of a multidisciplinary approach to prevent advanced diseases in families affected by rare tumour-risk syndromes. By emphasizing genetic diagnosis and high-risk patient surveillance, the project aims to enhance patient outcomes and alleviate the financial burden on healthcare systems. It will also deliver guidelines to improve communication about pathways of care between clinical teams, patients and caregivers.
By optimizing existing healthcare resources and communication materials, the project aims to significantly enhance outcomes for those living with these conditions.