Sustainable care for rare tumour risk syndromes
The PREVENTABLE project began in January 2023 and was created to assess the clinical, social and financial impact of applying multidisciplinary and specialized care to prevent advanced disease in families suffering from Rare tumour Risk Syndromes (RTRS). In a complex disease context such is the case of RTRS, consensus clinical guidelines and cumulative experience and knowledge of RTRS-specialized teams is essential for proper management of the diseases.