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Sustainable care for rare tumour risk syndromes

The PREVENTABLE project began in January 2023 and was created to assess the clinical, social and financial impact of applying multidisciplinary and specialized care to prevent advanced disease in families suffering from Rare tumour Risk Syndromes (RTRS). In a complex disease context such is the case of RTRS, consensus clinical guidelines and cumulative experience and knowledge of RTRS-specialized teams is essential for proper management of the diseases.

4.6

Budget (M€)

36

Duration (Months)

15

Partner Institutions

8

European Countries

About RTRS

Rare tumour risk syndromes (RTRS) are rare diseases, affecting 5 per 10.000 people or less and caused by heritable genetic variants. In RTRS, the lifetime risk to develop various cancers can be as high as 100%, and patients have a 50% chance of transmitting the disease to their offspring.

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